Jessica just called for me a minute ago, her movements are so bad she fell out of the bed, They really seem to be worse on these new meds. Im thinking of puttig her back on her old onesin the morning, il go to ask her gp for advice first. God give me strength to help her. It seems we are going around in circles Please pray for God to intervene as i do not know what to do, Even if anyone has any advice i would be grateful.

My brothers and sisters in Christ.Please pray that jessica will find true friends, all her other friends make plans and do not invite her, They only drop in when they have nothing or nowhere to go.
She is feeling very depressed and lonely.
And it doesn;t help when her friends treat her like a child, sometimes it feels as if calling to her makes them feel better about their own lives and feel more mature as they are well enough to go to college and work. I am writing this right now and i know that she is crying herself to sleep. It makes me so angry sometimes when they call to show off their new clothes and make up before heading off on a night out, I dont know why they do this to her and these are girls she has grown up with and helped with a lot of problems. She does not even want to go with them because she is not well enough but she says it would have been nice to be asked. She feels so lonely. She will be 20 next week. Please pray that the Lord will send a nice boy to her as she needs someone in her life, I pray that she will find her soulmate that they will be happy and respectful to each other. She is such a beautiful girl not just on the outside but on the inside. IN Jesus name i pray. AMEN

Jessica had avery bad day yesterday with the body movements(dyskinesia) she only managed 4 hours sleep in over 30 hours,I rang the hospital and asked to speak with the neurologist,he got one of his registars to talk to me, i explained that the new meds. were making the movements worse ,she had fallen out of the bed and hurt herself.I had to hold her tight in my arms to try and stop her moving but to no avail.This went on throughout the night until 7a.m. when the meds. finally wore off,She had 4 hours sleep and then it was time for her next dose and so it began again.He said he would talk to the main neurologist and ring me back this was at 2p.m. 3p.m. came and it was time for her next dose and i decided to skip it so that she would get some rest and i was still waiting for him to ring me back with advice.At 5.30p.m. i got fed up of waiting and rang him, he said that the neuorologist wanted to review her file before he decided what to do and that he would be meeting with him at 9a.m. in the hospital to do their rounds and would make sure he brought it to his attention again. He told me to ring back at noon tomorow but not to get my hopes up as this neuorologist can be very difficult to deal with.He said that to continue with her meds. even with the side effects until they can tell me what to do. He said that the doctor that saw her at the clinic at her last appointment had written a letter to the Head neuorologist in Dublin who specifically deals with parkinsons disease to see her as an urgent case. He also said that if i got too woried about her to bring her to the a &e but i know if i do this she will be left in a trolley in a cold corridor for a day waiting to see her neurologist and THATS IF HE HAD TIME.
If he has no news for me tomorow i will ask him to make her appointment to see them at the clinic sooner if he can. My problem is also i have to work in the mornings and my other daughter is almost due her baby and getting nervous being left alone incase she goes into labour and i have to go in with her, so although im praying for an emergency appointment in Dublin i am praying that it does not clash with my other daughter giving birth as she has no one else to go in with her and she is terrified. Therefore i
ask you to pray for myself and my daughters, i feel so helpless and tired. I pray that he will know what dosage or new meds. to give jess in the morning, please pray i am so tired that sometimes i am fighting the sleep at work and it makes me so angry that if i had the money to see this doctor and the guy in Dublin she would be seen straight away. The system is crazy..

THANK YOU ALL.... Thank you all for your prayers. The Lord is realy working in this situation. I couldn't believe it this morning, At 9.30a.m. i recieved a phone call from Jessica's neuorologist and i must stress he never rings any of his patients, he never even returned our g.p.s calls or letters, I was so shocked when his secretary asked me to hold for his call i began to shake and prayed that i would remember everything i needed to tell him and thank God i did, He said he will be out of town Thursday and Friday but i am to bring her to his clinic on Mon. afternoon at 2.30 p.m. to his private clinic and he will see her before they arrive, he said that there may be a chance she will have to go in to hospital.
This would be great as while they are trying different medications they will be able to monitor her and please God get the dosage right . I just pray that he will want to bring her in and that their is a bed available, even if she has to wait a couple of days for a bed , once ther is something being done at last! Please God I pray that he does not just write another perscription for a different pill and let me monitor her because if there are problems again i will have to wait a month to see him, whereas in hospital he will see her every morning and one of his doctors will be on call to observe her. Please Jesus let the doctors be able to sort out the meds. so that she can function properly without those awful frightening side effects. Thank you all my brothers and sisters in Christ for praying for Jessica and me, I really felt your prayers this morning and the strength of the power of prayer. Please keep Jesica in your prayers especially Monday at 2.30p.m. Praise Jesus.

Thank you all my brothers and sisters in Christ for all your prayers. Went to the doctor today and he decided not to bring Jessica in to hospital today, I dont know why as she was really bad when he saw her. He said he wanted to start from the begining with her meds. and put her on sinemet 62.5 three times a day which is a very low dosage, I reminded him that when she was on that amount in March they only worked for a short time and she would totally freeze up and that is why he upped the dosage in the first place, so he told me to give her four a day, on the good side i do not have to wait a month to see him, I f they do not work i am to bring her back to his private clinic again the same time next week. This alone is a miracle as even his secretary told me he never has done this,
let alone twice, and she will be called first so she will not be uncomfortable or feel self concious in front of others. I just helped Jessica into bed, the stronger meds. are out of her system now and she has started the low doseage, her movements have gone Thank God, but already her body is starting to slow down.I Thank Jesus that the doctor seems to be more interested in her case, Praise Jesus, and that he is more aproachable. I have reservations about this amount of dosage working but at least its a starting process and thanks to all your prayers they are treating Jessica the way she should have been treated when she first got sick. The power of prayer is so strong, Please continue to keep Jessica in your prayers, thank you all so much.

Jessica has taken her four pills today, and as i thought her body is starting to freeze up slowly, so i would say by tomorow she will start to need help getting dressed etc. again... I dont know anymore its either one extreme or the other each one is as bad as the other, Our only hope is a miracle, I know the Lord is working in this situation as the response from the doctor is testomony to that, but i wish Jesus would just take it all away from her as i know and believe he can do, sometimes i wonder why he does not, but i guess he has his reasons. She is so young to get parkinsons disease. I remember watching the news and seeing michael J. Fox and thinking what a shame for such a young man, little did i know my own daughter would get it a few years later. I am sorry if i sound negative but it is sometimes hard to keep positive, and i think im just having a bad night. Please, please pray for a miracle for my daughter, All your prayers for the doctor to respon to her were so strong, so if you all pray for a miracle for full healing, maybe God in his mercy will say YES. Let her be healed O lord Jesus, Please Hear all Our Prayers and the prayers from a broken hearted mother who feels so helpless.Amen. Thank you all.

Thank you al so much for your prayers, I am in the library on the computor as my one is in for repair, but even though i can not respond each day, this does not meen i will not be praying for you. Jessica is not doing so well at the moment, her body is very stiff and her balance is bad. Please pray that the doctor treats her with the right meds. Mon.@ 2.30p.m. Plus i ask you to say a special prayer for my other daughter who is due her baby today, that all goes well with her and the baby, they said they may start her on Thursday if she dosen't go herself by then. Thank you all so much. May God Bless you all.

Well thank you all for praying, i finally got the computor working, Jess is in hospital since last Tuesday and is doing very well, she is bored in there and wants to be discharged as she wants to be around for her sister when she goes in to hospital, the thing is they are just sorting her meds. she feels they are working but we can see that she needs them adjusted abit more, they also want to chance her on a different medication but she just cant see that she needs to stay in alittle longer especially when it took so long for her to get admitted. Please pray that she sees sence and stays put so that the doctors can do their work, they are also re testing her for Wilsons disease its too much copper in the body and has the same symptoms of parkinsons its doubtful that it will be, but it would be a mirracle as there is a cure for this. Please keep up the prayers and pray that it is Wilsons and she can be cured. The blesssings of Christ be with you all and thank you all for your prayers. Amen.

Thank you all so much for your prayers, Jess is out of hospital but they want my self and jess to do a gene test, It is juvinile parkinsons disease she has so that means i have the parkinson gene also which means i also will get it, or my daughter who is due her baby the test will tell if jess plans to have children in the future wether their will be a 50% chance of them getting parkinsons or 100% deffinet chance of them getting it either way i will get it. Jesus give me strength as i do not want to be a burden on my children. Please pray that my other daughter and her baby does not have it and that they will find a cure not just for me but for jess to have children of her own. I am in shock and i really need your prayers as i do not know what to pray for anymore. Please pray for us especially for my daughter who is due any day. P,S meds are working fine for Jess. IN Jesus name i trust. AMEN

thank you all so very much for praying for me and my family. my computer is back in action again, i missed praying with you all on line but you were all in my prayers and thoughts, i also missed the words of encouragement , thank you all so much. Jess is still bad, her appointment with the head doctor in Dublin is on Jan. 10th. please God he might be able to do something for her. GOOD NEWS the Lord has blessed my other daughter with a beautiful healthy baby girl. I was delighted to read your prayers tonight, i thought you might have forgotten about us. I am also sad to find out that sam has left. May God be with him ad his family and may the Lord Jesus be with you all, thank you all so much, In Jesus name i pray AMEN.

Thank God i am back on line, the computor was on the blink again. I missed everyone on the site and all your prayers and support, you all were in my prayers. Well Jess finally got to see a specialist in parkinsons disease in Dublin
and they are admitting her to try and get her meds. right for about two weeks. They mentioned inserting an apomorhine pump in to her so that the meds. will be in her system all the time, she does not mind this as long as she does not have a tube sticking out of her and have to inject meds into it, one of the docs said its only a litle bar thats inserted into you and will be changed every 3 mths. but the litrature they gave us says it is a portable pump which she would have to connect to a needle in her stomach and has to be inserted in a different place each day, i know if this is the case she will refuse it. they will be chancing her on pills first anyway so please God they might work, they also said that she would be a good candidate for deep brain stimulation surgery but this would be the last resort and a long way down the road.
I wish they would just do the surgery as i know this would sort her out and she could get on with her life. She is so depressed , she often says to me
no one will ever want to date her because of her illness and all of her friends have abandond her she is so lonely, she is getting too dependent on my company that somedays she wont get out of bed until i come home from work. Please keep up the prayers for her health and that the Lord will send some friends into her life who will accept her for who she is. May she find the right partner in life that will love and respect her. She deserves this as she is such a beautiful girl inside and out with so much love to give. Please pray for this for her as i know she needs and wants someone
to love and share her life with . If it be thy will Lord Jesus grant this request. Amen

Got a call from the hospital in Dublin last week, the head doctor wants her up at the day clinic to see her in person before he admits her to hospital, thats if they will admit her, the PD nurse said the doc said they might be able to treat her as an out patient,meenwhile back in her own city her doctor said that it was brought up in conversatio with other docs. about her being so young and having parkinsons disease since 18 yrs. old. they could not believe it. please keep Jessica in your prayers on the 10th. march at 2pm irish time. thank you all.

sorry i havent given an update in a while,
Jess has been in hospital in Dublin and thankfully they have stabelised the parkinsons. she still has bad days but thank God more good than bad. the only thing is she is now getting very bad panic attacks and when this happens or if she is feeling stressed it sets off the parkinsons and she freezes and goes back to square one. The doctors said that she will have to get cognitive behavior therepy to deal with this so now she is on the waiting list for this. she is on relaxers but they do nothing for her, i am taking her to her g.p. monday , he might give her somthing stronger, i dont normally agree with these type of meds. but i pray for anything now to help her. i feel distraught as she was so good coming home from Dublin, Please pray that these attacks leave her so that she can find some normality in her life.
P.S do anyone know about the God Channel on T.V is that for real or what?
Dont know what to think. Thank you all for your continues prayers you are always in mine. May God bless you all. In Jesus name i Pray. Amen.